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Nederlands Netwerk voor Lymfoedeem en Lipoedeem
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Lymphoedema Support Network
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Association française des Syndromes d'Ehlers-Danlos
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Deutsche Ehlers-Danlos Initiative e.V.
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Ehlers-Danlos foreningen i Danmark
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The Ehlers-Danlos Society
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Association LYMPHANGIOMES
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Asociación Española de Cavernomas
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CMTC-OVM
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HEVAS: Patient Association Vascular Anomalies The Netherlands
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Lymphangiomatosis and Gorham's Disease Alliance Europe
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VASCAPA asbl
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Nederlandse vereniging van mensen met een Wijnvlek of Sturge-Weber syndroom (Nv WSWs)
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Bundesverband Angeborene Gefäßfehlbildungen (Federal Association of Congenital Vascular Malformation)
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Suomen Klippel-Trenaunay ry
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De Contactgroep Marfan Nederland
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MAGICA onlus
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Association Marfans
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ABSM - Association Belge du Syndrome de Marfan asbl
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Marfan Europe Network
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Associazione J Peter Onlus
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Landsforeningen for Marfan Syndrom
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Marfan Hilfe (Deutschland) e.V.
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SLOVAK MARFAN ASSOCIATION
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Marrfanföreningen
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Associazione Fondazione Italiana per la Teleangiectasia emorragica ereditaria (HHT) "Onilde Carini"
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ASOCIACION HHT ESPAÑA HHT-SPAIN
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AMRO-HHT-France
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HHT Europe - Federation of Patient Organizations
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HHT Onlus - Associazione Italiana Teleangectasia Emorragica Ereditaria
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HHT-Swiss
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HHT UK
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HHT-Osler, foreningen Norge
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Osler.dk
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Morbus Osler Selbsthilfe e.V.
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Harteraad
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Telangiectasia Self Help Group
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HHT IRELAND
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Patientföreningen Morbus Osler
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Harvinaisten sairauksien ja vammojen potilasyhdistysten organisaatio HARSO ry
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DALYFO, Dansk Lymfødem Forening
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HHT Sverige
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ANDLINFA | Associação Nacional de Doentes Linfáticos
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Asociacion Española de Afectados por el Sindrome de Marfan
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Suomen Marfan-yhdistys ry, Finnish Marfan Association
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Association OLLIER MAFFUCCI EUROPE
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